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Shelby är hela vår värld! Vi hade ingen aning om att någonting skulle vara "annorlunda" om henne under graviditeten, men jag jobbar och levereras på ett FANTASTISKT sjukhus (OSF Saint Francis Medical Center i Peoria IL, för närvarande utnämnd till bästa NICU i landet!) Och vi hade turen att ha fått reda på det mycket tidigt! Hon fick diagnosen PKS vid 12 dagar, vilket är MYCKET tidigt i PKS-världen! Shelby var i NICU i 12 dagar eftersom hon hade en klyftgom och en anus placerad anterior. Vid dag 5 opererades hon för att korrigera anus och hennes gom reparerades efter 12 månader.

Hon är en väldigt smidig, glad, högljudd baby! Hon är försenad mentalt och fysiskt men gör stora framsteg med hjälp av yrkes- och sjukgymnastik. Vi har MÅNGA möten med MÅNGA olika läkare, men vi har hittills bara haft underbara upplevelser med dem alla. Vi har haft problem med återkommande öron- och lunginfektioner. Men det enda som finns kvar att göra är att älska henne allt vi kan och ge henne ALT vi kan. Hon gör våra liv fullständiga och vi skulle inte veta vad vi skulle göra utan henne nu!

Jag försöker aldrig fokusera på vad Shelby inte kan, utan istället vad hon kan göra. Och vad hon kan göra är att få en glädje i mitt liv som jag aldrig har känt!