Conor

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Hej allihopa,
Jag vill presentera er alla för min son conor. conor är nästan 3 år gammal. född 2007. Han är en väldigt glad liten pojke och är alltid full av leenden.
när jag var gravid med conor gick allt bra tills jag fick min skanning och det visade att jag hade polyhydramneös (överflödig vätska runt barnet). vid den här tiden visste jag inte att det var något fel. Jag gick i förlossning 5 veckor tidigt och conor vägde in på 7 kg 10 oz. vilket var riktigt stort. läkare kom till mig den kvällen och berättade att de märkte att conor hade dysmorpiska egenskaper och först trodde de att det var Downs syndrom som de uppenbarligen hade fel!
conor hade utfodringsproblem från han föddes, han hade problem med att suga. Tre veckor senare släpptes han hem när han började dricka ur flaskor. conor hade problem med höfterna och var tvungen att bära en bäckenbälte i ett par månader. detta åtgärdades .conor diagnostiserades så småningom med PKS vid 14 månader och det var en chock men en lättnad samtidigt som vi äntligen fick ett namn för vad han hade. conor fick mycket bröstinfektioner det första året och han hade en videoflueroskopi som visade att hans mjölk gick in i lungorna och det var detta som orsakade hans problem. så han hade satt in ett nässlang var femte dag. Jag utbildades för att infoga detta och det var svårt men det måste göras. detta pågick i 6 till 8 månader. conor har nu PEG-rör och sedan han fick in detta har han bara haft några få bröstinfektioner.
conor har glasögon och har testat hörseln, hans hörsel påverkas bara något. så att han kan höra oss. conor är försenat utvecklingsmässigt men han blir bättre när veckorna går. han sitter i 4 till 5 minuter och gör fler ljud vokalt.

conor är en glad liten pojke och vi älskar honom till bitar och skulle inte förändra honom för världen !!!!!!

av Elaine Murphy, conors mammy.